GDI/B1MGplus Stakeholder Forum 2026
Meeting information
When: 17 September 2026, 9:30-12:30 CESTVenue: Virtual
Please find the link to register below.
Aim of the meeting
The GDI/B1MGplus Stakeholder Forum 2026 marks a critical juncture for the 1+ Million Genomes (1+MG) initiative. It will introduce the European Digital Infrastructure Consortium for genomic data (Genome EDIC), the proposed long-term governance framework for cross-border genomic data access in Europe.
The forum includes an introduction to the Genome EDIC, a panel discussion on the reuse of genomic and health data and an opportunity for stakeholders’ input.
This forum will focus towards several key questions on Genome EDIC, including:
- Who will benefit?
- Who makes the decisions?
- What would it take for citizens and patients to genuinely trust this infrastructure?
Outcomes of Meeting
By the end of the forum, stakeholders will:
- Have a better understanding of Genome EDIC
- Hear directly from patient and citizen perspectives
- Discuss concerns of Genome EDIC, such as individual rights and trust, and the collective value of shared genomic data
- Be equipped to actively participate in, scrutinise, or challenge the Genome EDIC as it develops
Contact
For queries about the event please email gdi-coordination@elixir-europe.org